Long-Term Care
Is A Family
Affair
I
pondered my family's lack of knowledge
about long-term care planning. How could
we know so much about most financial issues,
but know so little about such a critical part
of the financial and estate planning process?
- Allen Hamm
My
family has confronted long-term care twice in 2 separate
generations. These experiences influenced me to choose a
career in long-term care planning and to write this book. These
experiences are not uncommon: millions of other American families
will face similar scenarios in the coming decades.
I was raised in a traditional American family. As I grew up, I
dreamed of going into business for myself, or maybe even buying
the small company my grandfather owned. He had built a successful
business that supported many of his family members for
several decades.
By the late 1970s, when my grandfather was 72, we began to
notice a slight change in his mental alertness. Since he appeared to
be managing the company without any problems, we paid little
attention to it at first. But we began to take it seriously when
we received complaints from his suppliers about late invoice
payments. Then one day, we got a call from a close family friend and
the owner of one of the businesses that supplied his materials.
"Allen," he said, "your grandfather's check just bounced." There
was shock in his voice, and a dead silence on my end of the phone.
My grandfather had always been meticulous about keeping his
accounts organized.
Over the next few months, my family was subjected to a painful
series of discoveries about the state of my grandfather's mental
health and his company's finances. We learned that he was suffering
from the early onset of Alzheimer's Disease. The condition was
causing him to slowly lose control of both his personal life and his
business affairs. By the time we discovered the true dimensions of
his problems, it was too late. His once thriving company was in
financial trouble.
Within two years of his diagnosis, my grandfather required a level
of long-term care our family could no longer provide at home. We
contacted Medicare, expecting that as a hard-working American
businessman who had made a positive contribution to society and
the economy, he would be well covered for whatever medical and
custodial care services he might require. What we learned was
almost as upsetting as our original discoveries: neither his Medicare
nor his Medicare Supplement policy offered coverage for long-term
custodial care. And although he had lost most of his assets in the
demise of his business, he still had too much money to qualify for
Medicaid, the welfare program.
Prior to my grandfather's health problems, my parents had been
diligently saving for an early retirement. But after my grandfather's
mental and financial decline, they were forced to cash in their
retirement
savings to fund quality care for my grandfather. He spent the
last four years of his life in a private pay nursing home.
After the loss of my grandfather's business, I pondered my
family's lack of knowledge about long-term care planning. How
could we know so much about most financial issues, but know so
little about such a critical part of the financial and estate planning
process? I became intensely interested in the subject of long-term
care and how our country funds this growing problem.
In the mid-1980's, I moved to California—something that I had
been considering for several years. Moving 2,000 miles away from
my family was one of the most difficult decisions I've ever made.
Dad had always been my mentor. Strong, wise, and patient,
he had always been able to say or do just the right thing at the
right moment. He had never been wealthy, but he taught us family
values and the importance of planning for our financial future. As
an adult, I admired his positive attitude and tenacity, especially
after experiencing adversity and set-backs. Slowly, with hard work
and integrity, he built a separate company of his own. Inspired by
his example, and the tragedy that long-term care brought to my
grandfather's last years, I fulfilled my own dream of starting a
business—a company that specializes in assisting people with
planning
ahead for long-term care before the need arises.
After becoming a specialist in long-term care planning, I worked with
my parents' financial advisor to evaluate LTC Planning options that
would be suitable for their situation. After experiencing my
grandfather's
long-term care situation, I didn't expect my parents to react
enthusiastically to a conversation about their own potential need for
long-term care. Few parents want to talk with their children about
the possibility of becoming dependent on someone else or requiring
assistance with their physical care. However, we all agreed that it
made sense to put plans in place that would give them choices we
didn't have with my grandfather—plans that would protect the
assets they had worked so hard to rebuild after his need for care.
They chose LTC insurance as their option, and I returned to
California pleasantly surprised that they had agreed to plan ahead
with no resistance.
About three years after his LTC insurance policy went into effect,
my father was diagnosed with mild Parkinson's Disease. Had he been
diagnosed years earlier or waited longer to purchase LTC insurance,
he would not have been able to obtain coverage. As we'll explain
later in this book, the ability to obtain LTC insurance is based on a
person's health at the time they apply for coverage, and a person
with Parkinson's Disease will not qualify for coverage.
My father was in his mid-60s when his symptoms started with a
slight tremor in his left arm. The prognosis was progressive
neurological
deterioration and, over a period of years, severe physical
and cognitive disabilities could be expected. But in the short term,
he remained active with his family, business, and church, and our
hopes were high that a cure for Parkinson's Disease would be found
within his lifetime.
Busy with my own family and running our company, I tried to
keep an objective eye on Dad's condition with frequent phone calls
from 2,000 miles away. Fortunately, my brother lives in the same
area as my parents, and is also able to keep me updated on Dad's
physical and mental health.
During my semi-annual visits, I noticed that physically, his tremor
seemed to be slowly getting worse. I respected him too much to pry
into his psychological health, but my frequent calls allowed me to
monitor his mood for signs of depression or fatigue. By this time,
my experience in handling several LTC insurance claims made me
well aware of the signs of many types of health conditions,
particularly
mental and neurological disorders.
Shortly before Dad turned 70, my wife, two sons and I attended
an eagerly anticipated family reunion. Seeing him for the first time
in almost a year, Dad seemed unusually tired and melancholy. Even
his grandsons failed to spark his usual enthusiasm. Concerned
about him, I suggested that the two of us have a private talk in the
backyard. We sat down at an old picnic table where we'd had many
family cookouts and private talks. I asked him to open up to me.
His eyes began to water, something I'd never seen. He's a warm
person, but has always been very much in control of his emotions.
He looked away and began to talk.
"Your mom doesn't know, and I don't know how to tell her. Or
even you...but here goes...I'm in debt. We're on the verge of losing
everything. We're behind on our house payment and the rental
property mortgages. The banks are no longer willing to finance our
projects. When I was diagnosed with Parkinson's, I knew that I only
had a short period of time to get your mother set-up, to make sure
she wouldn't have to worry once the Parkinson's took control.
I rushed with some major business decisions; I made some missteps;
I took on too many projects. I've lost control of where we are
financially."
At first, I couldn't accept what he was telling me. I tried to
reassure him, the way he had always reassured me. We were in
the family backyard, at our familiar picnic table, but I felt as
disconnected
as if I were watching a movie or having a bad dream. I felt a
certain level of panic, followed by—I'm ashamed to
say—a sense of
betrayal. Could this be my mentor, the man I had always looked up
to, allowing something to get so out of control? And how could we
repeat something so shockingly familiar to what we had been
through years earlier with my grandfather?
It was a heartbreaking moment, magnified by the realization and
the fear of what could happen to any of us, including me. In the
midst of all those overwhelming emotions, there was not
as much comfort as I had expected in knowing that he had a written
plan for long-term care, with an LTC insurance policy in force. As
much as the coverage will spare us from the financial consequences
of a future long-term care need, I realized for a second time that the
worst part of this issue called "aging" is the emotional
side—watching
how it humbles the people we love, and how it often affects their
ability to be as emotionally and rationally strong as they had been
in the past.
Several years have passed since that afternoon when I learned
once again how fast life can change. Fortunately, these past few
years have been good to our family: my dad's Parkinson's has progressed
more slowly. And after developing a plan of action as a
family, the worst of his financial problems have also been resolved.
They still have their rental property, although the family home had
to be sold. He has yet to collect a dime on his LTC insurance policy,
as he is very fond of reminding me. The last time we visited him, he
seemed like his old self again. Naturally, I still worry about the way
Parkinson's will affect his future. But we feel very blessed that he is
still able to live an independent and productive life.
My family's experiences are ones that many families are experiencing
this very minute. And these types of experiences will continue
to affect families in the coming decades, as we learn to respond to
this ever-increasing problem of the new health care crisis called
long-term care.
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